Every day I get a little more frustrated over this situation. How could so many doctors looking at so many scans not know what to expect when they opened me up? I know the scans won't show everything, but not knowing that two of the nodules were close to or attached to major blood vessels? Not knowing anything about the tumor that is supposedly wrapped around the superior vena cava? How is that possible? I will expect a full explanation from Dr. Flores when we see him on November 4. I feel like I'm going through all of this recovery for nothing. He opened me up essentially for nothing. What a waste of time, money and energy, to say nothing of the damage to my spirits.
We see Dr. K on Friday to discuss chemo options. I have to do some research this week so I'm prepared. I am familiar with some of the options available, but I also know there are some clinical trials she may recommend. I'll post an update after that meeting.
In the meantime, I'm getting in my walks each day (took off on Saturday) and have been off the pain meds since Friday night. I have quite a bit of discomfort along the incision site, and now that my cough is back in full force, my ribs and side are sore as well. I feel a little better each day, but wish that this recovery had been for something we had accomplished.
Thanks for all the good wishes. They truly help.
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You have had a lot to process in a very short period of time. Give yourself permission to feel what you are feeling. Who wouldn't be frustrated? As you heal and recover, we will all work with you as we approach the next step and will help you see the positives of what ever changes you need to make. Do not loose your faith and drive - you have come a long way and we have so much farther to go!
You are an amazing woman and I know we will get through this together one day at a time! Remember.... "glass half full"... You did a great job getting through this surgery! I love you dearly! Lydia
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