I have an appointment to see the head of the clinical trial on Tuesday. Dr. Maki is also the head of the Sarcoma Department at MSKCC, and he should be able to give me more details about this trial. I've been searching all the websites I can find that list clinical trials and have found no information on this one. Of course, I'm trying to find it based on the information that Dr. K gave me (two chemo meds vs. one, mTOR inhibitor, IGF) so if she didn't get all that correct, I won't be able to find it. I'll post an update here next week.
I'm also having scans next week: CT scans of the chest, abdomen and pelvis and an MRI of the brain. Dr. K didn't explain it to me, but I believe one of the exclusions in the trial is no brain metastases. As you know, I had mets to the bones of the skull, not to the brain, but they have to have scans to prove it. I'm not looking forward to the brain MRI, as I am stuck inside that tiny tube with a cage over my face for about an hour, but I'll be bringing my Ativan along to calm my nerves.
If I don't get into this trial, I found another trial that I would be interested in. I'll ask Dr. Maki about that one when I see him based on his opinion about my chances of getting into the first trial.
It's hard to believe that this is my second to last day at home. Too bad it's so crummy here today -- cloudy and drizzly -- although the temps are supposed to reach 60. No walk for me today! Hope the weather is better wherever you are.
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2 comments:
Don't let this lousy weather get to you! Enjoy your time left home!
Good things are coming so hang in there! I have faith. Love you, Lydia
Good luck in getting in the trial. We're rooting for you! Hope the weather improves for you!
Amy
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