Friday, August 20, 2010

Do I Get Frequent Flier Miles Here?

Last Friday night, two days after starting a new high blood pressure medication (that is a side effect of longterm steriod use), I totally freaked out at home. I thought that Ed wouldn't let me use my oxygen and if I did, he would throw me out. Completely irrational. I said I was never going to sleep again because I couldn't stop worrying about things. Ed sat and tried to calm me down, but it took until about 2 a.m. The next day I felt better but embarassed.

Sunday night it happened again but not as severe, but Monday morning when we were supposed to be going to the hospital for my radiation treatment, I really went off the wall. Ed had to call 911 for an ambulance to Sloan, where I was admitted. They did a CT scan of the brain, told me I was very dehydrated, and had a urinary tract infection from the catheter they placed before I left the hospital two days earlier (and was told to wear until the end of my 10 raditation treatments). They admitted me, did my treatments, started me on another antibiotic, and couldn't find a reason for the problem. I was released on Wednesday afternoon.

Thursday we came in for my 8th treatment and afterwards I had another episode. Since I was here they took me right to urgent care and admitted me again. Neurology aren't sure if it's from the brain surgery and subsequent radiation (and longterm steriod use), some medication, or what. We need to do something to fix this so it never happens again. I'll go home today after they will do some tests and I have my radiation treatment, or tomorrow if I can get treatment (they will do radiation on Saturday but inpatient only). Otherwise we'll come back on Monday for the final treatment.


When I learn something, you'll be the second to know.

2 comments:

Anonymous said...

I am sure everyone appreciates the update and we all want you to know that we love you , support you and are praying for you and the doctors to help you find out some answers. Love Lydia

Anonymous said...

Karen,

Just want you to know I am thinking of you and keeping you in my prayers. I do hope they find out what is going on, take care of it, and let you go home. Hope to see you when you get home. Love you,
Debbie