So much to write, so little time

I've tried several times today to post an update, but it's been busy around the office today. (In this market, I suppose that's no surprise.) I'll try to write more this week, but here's a brief update.

The doctor at the NJ chemo facility prescribed twice the amount of Benadryl that MSKCC did without my realizing it. Consequently, within just a few minutes of the IV ending, I felt like I was going to pass out and then started to get lower back pain along with what I would consider restless leg syndrome. The nurse immediately told me that it was too much Benadryl. She ran some additional saline to try to clear some of it out before starting the Doxil and did another 30 minutes of saline after my treatment finished. Unfortunately, it was too late. I was exhausted Friday night but couldn't get to sleep until after 1 a.m. because of my back and the twitchy feeling in my legs. No position helped and neither did a heating pad. I was not too awake on Saturday.

We drove out to Pennsylvania to visit an old friend and her husband on Saturday, and it turned out to be a long and tiring day. Two hours out and two hours back in rain and wind, and even though the temperature was mainly in the low to mid-60s, I couldn't get warm. I was very glad to see her and so glad we went, but by the time we got home, I was done. I slept 12 hours Saturday night, woke up Sunday with lots of energy, and petered out by 11:30 a.m. I managed to get a few things accomplished (I painted pumpkins for the first time -- lots of fun) and then spent the rest of the day feeling tired and drained. After 8 hours of sleep, I'm still pretty tired but it was a work day, so we were up with the alarm at 4:15.

I go tomorrow to MSKCC for my simulation, where they will take additional CT scans of my brain and pelvis, put some tattoos on me for lining up the machines, make my face and body molds, and generally not let me have a good time. This all will take at least two hours, so tomorrow will be a long day.

I'll report back as soon as I can to let you know how I made out.