Wrote too soon

I'm back in Sloan for a few days. Dr. K called last night at 5 to ask me to come in to Urgent Care so a team of specialists could get together and figure out what's causing my numbness and other issues. Ed dropped me off here last night and I was admitted to my room at 11:30 last night. I was seen by the entire neurology department twice this morning and they ordered a new MRI of my lower spine because they believe that something is pressing on my 3-5 saccral nerves and want to redo the MRI even though I had one done at CentraState a week ago. Of course, everything in the hospital moves at a snail's pace, so I'm waiting and napping until they come for me. I'm very hopeful that this will finally resolve my problem with urination, which has been going on in various modes since Memorial Day weekend when I had to be catherized because I couldn't go. Now I have the opposite problem. Keeping my fingers crossed.

I have seen a patient representative about getting a new oncologist. I can no longer rely on Dr. K, especially after asking me what the next step should be. I agree that we need to do chemo if I don't have radiation to my nerves, and I have reached out to my group for advice on other chemos. One person has suggested Votrient, which has given several members a very good response, so I will be discussing this with the new oncologist and try to get things started by the time I leave here. I'll let you know what happens and when.

I'm still swollen and my blood pressure and pulse rate are high, while my oxygen saturation is only 92 despite being on oxygen all the time. The nurse practioner is coming in to discuss those issue and I'm on blood pressure meds now in addition to being on the high dose steriod. At least my skin has not been painful today as it sometimes gets because of the amount of swelling.

I've just been called down for the test, so I'll post later. Wish me luck in getting this finally taken care of, regardless of what they find.