Sunday, May 30, 2010

Another Sunday evening

It was a gorgeous day here. Ed spent most of it working outside around the pool, and we finally got our ponds uncovered and the fountains working so our goldfish are now very happy. The pool looks great and I showed Ed how to add the chemicals today (that's usually my job). The water temperature is 86 degrees -- almost warm enough for me to go in! Maybe tomorrow.

I have been somewhat lazy since the radiation treatment on Wednesday, but tonight we went for a walk up our street and down the other side. Doesn't sound like much, but it was pretty far for me. I'm still having balance and gait issues, but I have an evaluation for physical therapy this week, so hopefully I'll start that soon and get them worked out. My steriods are on the last part of the tapering off and should be done on Wednesday, so perhaps that will help. I'll be very happy when the roundness in my face is gone. I look like a blob!

I've been sleeping better and have made it all the way down to a flat pillow, which is how I usually sleep. (In the hospital, I wasn't allowed to tilt my head below 30 degrees. I've been slowly lowering myself ever since.) It's been weird sleeping with my head at an angle, and several nights I had a very difficult time getting comfortable that way. I only have three sleeping positions -- left side, back, right side -- but they work for the most part. One of these days I'm going to have to give up my afternoon nap, which has become a luxurious habit since I've been home, but once I get more active I'm sure I won't even need it. If I have to go back to the office regularly before the boss goes away for the summer, I surely won't get one then!

Now that the treatments and surgery are complete, the next step is to decide with Dr. K what chemo to use. I didn't mention that the day I was discharged, she came by the hospital early in the morning and sat with us for at least 30 minutes, talking a bit about chemo but mostly just chatting. It was a side of her I hadn't seen before, and I must say that I enjoyed it. She said at that time (before we knew when the radiation would take place) that we would meet afterward to come up with a plan. I'm going to notify her office Tuesday that everything is done and get a date on her calendar. I'll let you know when it is. She did say she wanted to do scans again first and I know that they generally wait three weeks after surgery or radiation to start chemo again, so it will still be a couple of weeks before anything would start.

I hope those of you that can are enjoying the long Memorial Day weekend. I look forward to being back in touch more now that I'm feeling better.

1 comment:

Anonymous said...

So happy you and Ed came for a visit on Monday and I will say it again, you look fantastic! Stop worring about your face - we all know it is from the medicine and that soon will go away. Besides, you are adorable and beautiful at all times. I saw you sneak a smile in at Isabella and that is my Karen I love and know so well! Keep smiling sweetie and the rest will fall into place. Keep up the GREAT work; you are making fantastic progress and hope to take you out later this week! Love Lydia